We are now 4 days post Humira double loaded injections. And hubs is suffering. Not from the meds. From the HS throwing itself into some kind of mad overdrive cos hubs dared to try and kill it off.
Pain and lesions with more pain and lesions on top and then some. Never seen my hubs so floored. HS is horrible Shite. So the one thing on hubs mind is to ask himself why me and why now? In between the pain and the wounds you would also ask yourself this but there ain't no answers. It just is.
I feel sorry for you. I have it as a light case . Hugs to you both I have shared this with my family since it tends to run in the family in one way or another.
ReplyDeleteThank you. Please feel free to share. The more people who are aware of HS the better.
DeleteI have it on my Facebook page too
ReplyDeleteYes, HS fights back like the devil when anything invades and tries to eradicate it.... I HATE THAT about this stupid disease! Prayers continue for your sweet hubby to get some relief, hon. <3
ReplyDeleteI am writing this message as a way to take a stand and make a difference. My name is Tracy Newman, and I have suffered for the past 30 years with a debilitating, and extremely painful skin disease called Hidradenitis Suppurativa (HS). It is
ReplyDeleteestimated that only 1% of the world population suffers from this condition. Therefore, there has been very little research to help find a cure. We need people to unite and make a stand together. One voice cannot be heard, but the voice of many can make a difference.
My boyfriend, who is a web designer, has graciously taken it upon himself to help with this cause. He has set up a Facebook page (www.facebook.com/HidradenitisSupportive), a Facebook support group (www.facebook.com/groups/HidradenitisSupportive/), a Twitter account (twitter.com/Hidradenitissup), and a website (www.hidradenitissupportive.com).
Some of you are friends, some of you are family, and some of you are fellow sufferers. I ask all of you to please join in this cause... Like the Facebook page, join the Facebook support group, follow the Twitter, visit the website, sign the petition (located on the website). The website is going to be a contantly changing, updated site, so visit every week or so to look for new info or content. For those of you who have already joined us, THANK YOU!!
I know many of you are not personally affected by HS, but someone you know IS. Help make a difference! United WE stand. The only true enemy here is apathy.
I thank you for your support!
Tracy Newman